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World Federation of Neurology Research Group on Motor Neuron Diseases/Amyotrophic Lateral Sclerosis: Linking Clinicians and researchers worldwide with the goal of finding effective treatments and eventually a cure for Motor Neuron Diseases/Amyotrophic Lateral Sclerosis (ALS)

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German Charity for Amyotrophic Lateral Sclerosis

German Network for Motor Neuron Diseases

WFN Applied Research Groups

Welcome on the website of the European Network for the Cure of ALS (ENCALS), formally named EALSC

The Thierry Latran Foundation was established on June 25, 2008 under the aegis of the Fondation de France

The World Federation of Neurology was formed in Brussels in 1957, as an association of national neurological societies.  Today WFN represents 114 professional societies in 113 countries in all regions of the world, and each society registers its own individual member neurologists with us.

The Bruno and Ilse Frick Foundation for Research on amyotrophic lateral sclerosis (ALS) is calling for grant applications. The aim of the Foundation is to encourage basic biomedical research related to understanding the cause of ALS (100,000 CHF over 2 years). These awards are not directed to clinically related projects for patient care. There is no geographical limitation to the recipients of these grants.

The ALS Association Web Site
An informative site aimed especially at ALS patient resources and information, with summaries of research and treatment. The ALS Association has provided addresses of local chapters and patient support groups in the United States.

CAALS C.A.R.E. is a voluntary, physician-directed program to improve outcomes for patients diagnosed with amyotrophic lateral sclerosis.

ALS Connection Registry
Baltimore, MDThis MDA funded, patient-driven website collects data from ALS patients in North America. The data is used for ongoing ALS research. The ALS Connection Registry is coordinated by The Forbes Norris MDA/ALS Research Center at California Pacific Medical Center and the San Francisco Coordinating Center.

ALS Hope Foundation
This colorful website describes the work of Dr. Terri-Heiman Patterson and her amazing colleagues in the ALS Hope Foundation, centered at Drexel University in Philadelphia PA.

ALS Online Genetic Database
Alsod is designed to provide both the scientific community and wider public with up to date information on ALS genetics.

ALS Research Group
Information about the ALS Genetic Repository Project, advocacy slides and other initiatives from this group of North American ALS/MND researchers and ALS Clinic Directors.

ALS/SLA Society of Canada
Research and patient information

Clinical Trials Summary: from the NIH
The U.S. National Institutes of Health, through its National Library of Medicine, has developed this clinical trials sumamry to provide health professionals, patients, family members and members of the public current information about clinical research studies.

Duke University ALS Clinic
This lively and entertaining site shows the ALS clinical team, the ALS advocacy work, and the ALS research being conducted at the Duke ALS Clinic in Durham NC.

International Alliance of ALS/MND Association
The Alliance functions primarily as a forum for the exchange of information on all aspects of the disease, research and management of care as well as the provision of support through networking and sharing the development of ideas on good practice. Its developing role is the advancement of the patients' views in discussions affecting the well-being of people with ALS/MND.

Irish Motor Neuron Disease Research Group
The Irish MND research group has been active for 15 years, and has made many contributions to our understanding of Motor Neurone Disease.

Les Turner ALS Foundation
Chicago’s leader in ALS research and patient care since 1977.

Motor Neurone Disease Association
An impressive resource for patients living with motor neurone disease and those who care for them.

The Muscular Dystrophy Association
The Muscular Dystrophy Association website features news and information on ALS and other neuromuscular diseases, including The MDA/ALS Newsmagazine, a chat room, clinical trials listings, research news, and other researcher and patient services and resources. Research grant inquiries should be directed to Sharon Hesterlee, Ph.D., MDA's Director of Research Development at shesterlee@mdausa.org. All other inquiries (including services, equipment purchase, support groups, MDA ALS Clinics, educational seminars, etc) can be directed to Annie Kennedy, Director of the ALS Division, at akennedy@mdausa.org.

National Library of Medicine
The National Library of Medicine's online resources are vast and varied, including databases for PubMed and OMIM that are free.

Neuromuscular Disease Center
This attractive site is maintained by the Washington University School of Medicine, St. Louis, MO. It contains much basic information about neuromuscular diseases, including ALS, with links to other sites including MEDLINE.

Northeast ALS Consortium
Informative site detailing the activities of one of the largest ALS trial groups in the world.

Packard Center for ALS Research at Johns Hopkins University
The site describes the amazing array of basic and clinical ALS research underway at Johns Hopkins.

Prince of Wales Medical Research Institute-Kiernan Group
The Institute is one of the largest centres of research on the brain and nervous system in Australia.

World Muscle Society
The World Muscle Society - WMS - is a new international, multidisciplinary, scientific society, dedicated to the advancement and dissemination of knowledge in the field of neuromuscular disorders, for the benefit of patients. WMS was founded in London, UK, on 4th June 1995.



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